Definition: Anonymous Genetic Research

According to Oregon statute, any scientific or medical genetic research conducted in such a manner that any DNA sample or genetic information used in the research is unidentified (ORS 192.531(1)).

According to the Oregon Administrative Rules, scientific or medical research conducted in such a manner that the identity of an individual who has provided a sample, or the identity of an individual from whom genetic information has been obtained or the identity of the individual’s blood relatives, cannot be determined. Anonymous research does not include research conducted in such a manner that the identity of such an individual, or the identity of the individual’s blood relatives, can be determined by use of a code, encryption key or other means of linking the information to a specific individual (OAR 333-025-0100(1)).